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Chronic Ill

In september 2000 I got something I thought was a flue. which gave me very high fevers. It took a long long time to recovers, and after three weeks I wasn't even slightly better. The doctor gave me antibiotics but that didn't really help either. After 6 weeks it was a little better but I still had daily temperatures over 100 or 101 F. And it never went away.

I got troubles walking, troubles with concentration, with sleeping, I was constantly tired, actually, totally exhausted, and sometimes needed to sleep 18 hours a day. And all this never went away, in effect it often becomes worse for a while, then moves down again a while, like a wave.

Now the dutch system is not easy if you have a disease that can't be proven, especially if you have psychological problems and binge eating disorder next to that, then they just say it's all in your mind. SO even though I now use a wheelchair, scooter and crutches at times, I had to buy all that myself when others in the Netherlands get all those from the government. I feel vvery betrayed by the system and by allt he people who have a solution that of course I had NEVER thought about, being the dumb person I am.

REading a little more about all this on the itnernet, it turns out that my problems look a lot like CFS, ME, or fibromyalgia, all diseases that are not really accepted or understood. I just hope sometimes they will found out that it is indeed real and not just in my head.

For more information on CFS follow this link, or this one.